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About Us

The PBC Foundation is the only UK organisation exclusively dedicated to providing support and information to those affected by PBC



  • Collette Thain MBE

    Collette Thain MBE

    Collette Thain MBE is the CEO of the PBC Foundation.  Having been diagnosed with PBC in 1994, I set about trying to inform myself about my condition, its implications for my life and how best I could help myself.  Eventually, I found the PBC Patient Support Group which was enormously helpful, albeit limited: there were patients there but no formally written information which was known to be current or even accurate.  This led me to form the PBC Foundation in 1996 and watched it grow into one of the world's leading PBC organisations.  I have had many proud moments over the years, from accepting my MBE on behalf of "those suffering from PBC" to seeing the completion of our first PBC Compendium, "Living with PBC".  I still love my work as CEO, keeping us on an even keel financially, developing new services, keeping in touch with members and knowing that no two days are ever the same.

  • Eileen Brownlie

    Eileen Brownlie

    Eileen, who lives in Edinburgh, has many years experience of working in the private, public and voluntary sectors. She has been a Trustee of the Foundation since 2005 was formerly the Chairman.

  • Adrian Innes

    Adrian Innes

    Adrian Innes started his career in banking over 30 years ago in Forres as bank junior, prior to moving to Aberdeen, where he worked for 18 years, then moving to Edinburgh as Senior Business Development Manager for the Royal Bank of Scotland. Adrian joined the Clydesdale Bank in 2005 and is now Head of Business Direct Glasgow.

    Responsible for the financial performance of Business Direct, within Business and Private Bank and delivers with a sense of urgency. Demonstrates excellent leadership behaviours, inspiring and motivating employees to achieve excellence in individual and team performance. Develops a dynamic strategy tailored to the business market and is an ambassador of the Business and Private Bank brand in local community. A key objective is to ensure that the business remains focused to achieve optimal and sustainable financial performance as well as satisfying risk management and compliance standards across the whole Business.

    Over the years Adrian has developed a wealth of experience working with businesses from start up to well established companies throughout Scotland ensuring the business remains focused to achieve optimal and sustainable financial performance.

  • David Campbell

    David Campbell

    David Campbell has been on the Board of the Foundation since 2011. He is a solicitor in Edinburgh where he lives with his wife and son. David enjoys music and theatre and the great outdoors.

  • James Neuberger

    James Neuberger

    James Neuberger is an Honorary Consultant Physician at the Liver Unit, Queen Elizabeth Hospital Birmingham and Associate Medical Director at Organ Donation and Transplantation in NHS Blood and Transplant. He qualified from Oxford and trained in London, Leeds and Birmingham. He has had a long-term interest in liver disease, especially Primary Biliary Cirrhosis, and liver transplantation. He has published extensively on liver disease.

  • Sharon Stuart

    Sharon Stuart

    Sharon Stuart is a seasoned Cluster Sales Manager for one of the UK’s fastest growing privately owned hotel groups, Splendid Hospitality Group.  She currently manages sales at the PBC’s neighbouring boutique Hotel Indigo Edinburgh on York Place as well as the Piries Hotel in Haymarket.

    Sharon has established a career in hotel sales spanning over 10 years working with a range of hotels including the luxury Waldorf Astoria and Galgorm Resort and Spa.  Sharon’s skills include forging successful partnerships and driving sales for the hotels in her region.

    Her best friend, Caroline, was diagnosed with PBC in 2009 and since then Sharon has become an ambassador for the Foundation helping to raise awareness through a variety of fundraising events.

    As a Trustee of The PBC Foundation Sharon’s key objectives will be to help continue to raise the profile of the organization, support more fundraising and commercially led activities and participate in boosting the organisation’s social media outreach.

    In her spare time Sharon loves spending time with Caroline going swimming and taking her two dogs out for long walks in the Eildon hills.  Sharon also has a secret bucket list of travels to tick off with friends and family. Her next destination is Mexico!

  • Lynn Warren

    Lynn Warren

    Lynn lives in Cheshire and became a member of the PBC Foundation in 2000 shortly after being diagnosed, becoming a volunteer a few years later in 2003.

    Lynn is retired after a career as a civil servant which has given her the experience and skills and confidence necessary to contribute fully as a trustee of the foundation.

    Lynn has witnessed the growth of the foundation and recognises the knowledge and wide experience of the board members will ensure it continues to do so. She feels her main contribution should focus on giving a members perspective on how decisions made by the board impact on the support given.