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The PBC Foundation is the only UK based organisation that specifically deals with PBC.

Latest News

Latest News

  • Clickmeeting Face to Face meetings

    Clickmeeting Face to Face meetings

    Δημοσιεύτηκε: Oct 14th, 2020

    We will be hosting a Clickmeeting Face to Face meeting for members on the following dates: Saturday 17th October at 2.00 PM UK time Wednesday 28th October at 7.00 PM UK time These meetings are limited to 25 participants only, so spaces...
  • October Webinars

    October Webinars

    Δημοσιεύτηκε: Sep 29th, 2020

    During October, our Self-management webinars will remain on a Tuesday whilst the clinician Q&A sessions will be on a Thursday. Both sessions will be at 2pm UK time. The Thursday sessions will continue to be shared live on Facebook Our...
  • PBC Day Programme

    PBC Day Programme

    Δημοσιεύτηκε: Sep 12th, 2020

      PBC Day is here!!  So here is the programme for you, with all times UK time. 01.00 Professor Martin Weltman: PBC in Australia (08.00-10.00 local time) https://pbcfoundation.clickmeeting.com/australia Event ID: 599-768-364Participant...
  • September Webinars

    September Webinars

    Δημοσιεύτηκε: Sep 1st, 2020

    During September, we will move our Self-management webinars to a Tuesday and keep the clinician Q&A sessions to a Thursday. Both sessions will be at 2pm UK time. The Thursday sessions will continue to be shared live on Facebook Our...
  • International PBC Day - Sunday 13th September 2020

    International PBC Day - Sunday 13th September 2020

    Δημοσιεύτηκε: Aug 27th, 2020

    International PBC Day is almost upon us and we are so excited to be sharing our plans to you.  With Covid-19 affecting all of us, and curtailing our physical activities, we have a multi-pronged approach to PBC Day in the hope...
  • Professor Roger Williams CBE

    Professor Roger Williams CBE

    Δημοσιεύτηκε: Jul 28th, 2020

    We were deeply sorry to learn of the death of Roger Williams who died in London, after a cardiac event on 25th July 2020. Roger was a giant in the field of liver medicine and has had a huge impact on the understanding and treatment...
  • August Webinars

    August Webinars

    Δημοσιεύτηκε: Jul 2nd, 2020

    We are delighted to inform you that we will be continuing our series of webinars during the Covid-19 lockdown into August, for those of you who wish to attend. Our intention is to keep these going as long as we are under restrictions. ...
  • International NASH DAY 2020

    International NASH DAY 2020

    Δημοσιεύτηκε: Jun 4th, 2020

    We are delighted to be working in partnership with Global Liver Institute for this years International NASH Day, which is on Friday June 12th 2020. There are a number of events going on all around the world to acknowledge IND (for...
  • June Webinars

    June Webinars

    Δημοσιεύτηκε: Jun 1st, 2020

    The webinars we have hosted during the Covid-19 pandemic have been very well received.  Thank you to everyone who has participated. We will continue to host our webinars each Monday and Thursday through June. If nothing changes...
  • PBC Webinars

    PBC Webinars

    Δημοσιεύτηκε: Apr 7th, 2020

    We will be hosting a series of webinars to complement our digital services that are in addition to our helpline giving you information during Covid-19. We hope you and yours are safe at this time and we are here to support you in any...
  • Message from Dr Andrew Yeoman, member of PBC Foundation Medical Advisory Board

    Message from Dr Andrew Yeoman, member of PBC Foundation Medical Advisory Board

    Δημοσιεύτηκε: Mar 27th, 2020

    Dr Andrew Yeoman, member of the PBC Foundation Medical Advisory Board shares his message with us. Please click here to view: https://youtu.be/cx0UscE0sVw
  • Message from the Chairman of the PBC Foundation Medical Advisory Board

    Message from the Chairman of the PBC Foundation Medical Advisory Board

    Δημοσιεύτηκε: Mar 24th, 2020

    Professor James Neuberger, Chairman of the PBC Foundation Medical Advisory Board, shares an important message with us.  Click here to view: https://youtu.be/YVyNetPmOk4
  • Bear Facts Issue 89

    Bear Facts Issue 89

    Δημοσιεύτηκε: Mar 22nd, 2020

    The latest issue of our Bear Facts magazine is available within the members section of our website.
  • "Your Liver" articles in the Guardian

    "Your Liver" articles in the Guardian

    Δημοσιεύτηκε: Mar 17th, 2020

    We are delighted to inform you that within the Health Awareness section of today’s edition of the Guardian, there are several articles about “Your Liver” including a contribution by our CEO, Collette Thain MBE about Primary...
  • Cancellation of ALL Local Meetings

    Δημοσιεύτηκε: Mar 13th, 2020

    On the advice of our medical advisory board on 13 March 2020, all local meetings, self-management workshops and conferences will be postponed until further notice with immediate effect. For more information call the PBC Foundation...
  • PBC and Covid-19

    PBC and Covid-19

    Δημοσιεύτηκε: Mar 4th, 2020

    From the PBC Foundation Medical Advisory Board, 4th March 2020. Readers should be aware that understanding is continuing to evolve so they should look at websites listed below. Over the last few days, our helpline has received many...
  • You Spoke. We Listened

    You Spoke. We Listened

    Δημοσιεύτηκε: Feb 28th, 2020

    You spoke. We listened. New updates on the App: more information, more languages, more tools and better usability. Here is the first of a series of “How to” videos, this one focussing on helping you gain access to all the...
  • London Marathon

    London Marathon

    Δημοσιεύτηκε: Feb 26th, 2020

    We are delighted to introduce Michelle Mitchell, one of our runners in this years London Marathon. Michelle shares her story and motivation to participate and raise funds for the PBC Foundation: I was always a healthy and active person,...
  • Self-management Workshops

    Δημοσιεύτηκε: Feb 20th, 2020

    We are hosting a number of self-management workshops, please see details below:- 18/03/20 ANGEL & ROYAL HIGH STREET GRANTHAM LINCOLNSHIRE NG31 6PB   19/03/20 MANSFIELD MANOR HOTEL CARR BANK PARK WINDMILL LANE MANSFIELD NOTTINGHAMSHIRE NG18...
  • Cancellation of Dorset Meeting

    Δημοσιεύτηκε: Feb 5th, 2020

    The Dorset/Wiltshire meeting to be held on Saturday 8th February 2020 from 11am-1pm has been cancelled due to illness. The meeting will now be held on Saturday 15th February 2020 from 11am-1pm at:- THE CROWN HOTEL WEST STREET BLANFORD...
  • Collette's Christmas Message

    Collette's Christmas Message

    Δημοσιεύτηκε: Dec 23rd, 2019

    In the last vlog of 2019, Collette delivers her Christmas message. Please click the following link to view: https://youtu.be/ztkPNV9gJaY We hope you have a Merry Christmas and Happy and Prosperous 2020
  • Mail on Sunday artcile

    Mail on Sunday artcile

    Δημοσιεύτηκε: Dec 17th, 2019

    PBC features in The Mail on Sunday. Thank you Pat Hagan and all contributors telling their stories. A special thanks to our Edinburgh volunteer Esther Davidson who also helps the PBC Foundation to provide free Support for Life to over...
  • CymaBay Seladelpar Drug Trial Update by Dr George Mells

    CymaBay Seladelpar Drug Trial Update by Dr George Mells

    Δημοσιεύτηκε: Dec 3rd, 2019

    CymaBay Therapeutics, a drug company focussed on developing medications for liver diseases including primary biliary cholangitis (PBC), recently announced that it had stopped all studies of a potential new medication called Seladelpar....
  • Annual raffle 2019

    Annual raffle 2019

    Δημοσιεύτηκε: Nov 25th, 2019

    Our sincere thanks to everyone who participated in our Annual raffle this year. Congratulations to our prize winners who are: 1st prize: Christine Prior, Suffolk 2nd prize: Christine Swanston, Lincolnshire 3rd prize:...
  • Flu Vaccination

    Flu Vaccination

    Δημοσιεύτηκε: Nov 6th, 2019

    It is that time of year again when we receive enquiries about whether or not one should have the vaccination against ‘flu.  Professor James Neuberger of Queen Elizabeth Hospital, Birmingham provides some information...
  • AASLD Guidance for PBC

    AASLD Guidance for PBC

    Δημοσιεύτηκε: Nov 6th, 2019

    We are delighted to share with you our brand new Lay Guidance based upon the AASLD Guidance for PBC.  Knowing how powerful the EASL lay document has been, we were delighted when we were asked by PBC patients in the US to do a...
  • PBC Smartie Challenge

    PBC Smartie Challenge

    Δημοσιεύτηκε: Oct 21st, 2019

    Our amazing Nottingham volunteers Wendy and Gill wanted to raise funds for #PBCday2019 so they created the #PBCsmartiechallenge for their group to get involved in. Watch here: https://www.youtube.com/watch?v=IJd7IaQCk-I&feature=youtu.be So...
  • Co. Antrim Charity Event in aid of the PBC Foundation

    Co. Antrim Charity Event in aid of the PBC Foundation

    Δημοσιεύτηκε: Sep 20th, 2019

    Our member Yvonne Small and husband John are hosting a charity evening on Friday 4th October 2019  from 9pm-12 midnight. The event will be held at: The Diamond Bar 15-17 The Diamond Ahoghill Ballymena  Co Antrim BT42...
  • Join Us on International PBC Day 2019

    Join Us on International PBC Day 2019

    Δημοσιεύτηκε: Sep 6th, 2019

    It’s International PBC Day this Sunday 8th September, and we have various events happening up and down the UK.  Why not pop along to your local event and help raise support in your area?  This is also an excellent opportunity...
  • Spotlight on Rare Diseases

    Spotlight on Rare Diseases

    Δημοσιεύτηκε: Sep 4th, 2019

    Currently, there are between 6,000 and 8,000 rare diseases and it is estimated that 3.5 million people in the UK will be affected by a rare disease during their lives. Despite the scale of the issue, over 90% of know rare diseases...
  • Organ Donation Week

    Organ Donation Week

    Δημοσιεύτηκε: Sep 3rd, 2019

    #organdonation week starts on Monday 02 September. Please help raise awareness by having conversations about the importance of organ donation and how it helps save lives. Have you thought about organ donation? Make sure you share your...
  • Bear Facts Issue 87

    Bear Facts Issue 87

    Δημοσιεύτηκε: Aug 29th, 2019

    The latest issue of our Bear Facts magazine is available within the members section of our website.
  • International PBC Day 2019 - Know your numbers

    International PBC Day 2019 - Know your numbers

    Δημοσιεύτηκε: Aug 8th, 2019

    Join others from around the world raising awareness and funds for International PBC Day on 8th September 2019. Please support the PBC Foundation by donating or creating your own fundraising page. https://www.justgiving.com/campaign/PBCFoundationInternationalPBCDay2019 Why...
  • Three Peaks Challenge

    Δημοσιεύτηκε: Jul 4th, 2019

    A message from Robert, our Head of Education and Development:   I would be grateful if you could visit this page and support our efforts on behalf of the Foundation. This is a monumental effort. I have done this in 48 hours before...
  • A Call to Arms!

    Δημοσιεύτηκε: Jun 28th, 2019

    A call to arms! You probably don’t think twice about treating yourself to a cappuccino or flat white. Please help to secure the future of the PBC Foundation with the price of a coffee. The service we provide is free for users,...
  • Bear Facts Issue 86

    Bear Facts Issue 86

    Δημοσιεύτηκε: Jun 21st, 2019

    The latest issue of our Bear Facts magazine is available within the members section of our website.
  • New Volunteers

    Δημοσιεύτηκε: Jun 5th, 2019

    We are delighted to welcome new volunteers in the following areas: Anne Goudie – Glasgow Keith Loveridge – Isle of Wight Joan Grundy and Linda Brown – Merseyside Joan Bailie – Co Antrim Grainne Doran –...
  • Fife PBC Group -  Bridge to Bridge Charity Walk

    Fife PBC Group - Bridge to Bridge Charity Walk

    Δημοσιεύτηκε: Jun 4th, 2019

    Our group are planning a charity walk in aid of the PBC Foundation.  The route is from the Forth Bridges to the Tay Bridge along the beautiful Fife Coastal Path.  The route will be broken down in to 10 legs of approximately...
  • #RareFamilies

    #RareFamilies

    Δημοσιεύτηκε: May 2nd, 2019

    In the latest issue of Rare Revolution Magazine, Robert (Head of Education and Development) talks about his mother Collette (CEO), her diagnosis of PBC, and how their journey through the diagnosis led him to work for the PBC Foundation. Click...
  • Success For Our Seven Marathon Runners

    Success For Our Seven Marathon Runners

    Δημοσιεύτηκε: Apr 29th, 2019

    We would like to congratulate our seven runners on successfully completing the Virgin Money London Marathon, on the 28th April.  We look forward to sharing their fantastic achievements in The Bear Facts magazine. 
  • Easter Office Closure

    Easter Office Closure

    Δημοσιεύτηκε: Apr 18th, 2019

    Please note that the PBC Foundation office will be closed on Friday 19th April, 2019. We will reopen on Monday 22nd April at 9am. Happy Easter to all.
  • Office Closed Monday 08th April 2019

    Δημοσιεύτηκε: Apr 4th, 2019

    As our Volunteers Conference is taking place over this weekend, our office will be closed on Monday 08th April. If you telephone us over the weekend or Monday, please leave your name, telephone number and any message and we will...
  • Annual Volunteers Conference 2019

    Annual Volunteers Conference 2019

    Δημοσιεύτηκε: Apr 1st, 2019

    Our Annual Volunteers Conference is approaching fast and will be held at the Edinburgh Marriott Hotel on Saturday 06th April.  We will be welcoming some thirty Volunteers from throughout the UK and are sure it will be a most enjoyable...
  • Virgin Money London Marathon - Our Seven Runners

    Virgin Money London Marathon - Our Seven Runners

    Δημοσιεύτηκε: Mar 27th, 2019

    We are excited to tell you that seven runners will be participating in the Virgin Money London Marathon in aid of the PBC Foundation, on Sunday 28th April 2019. You can read why they’re choosing to get involved and donate...
  • Rare Disease Day 2019

    Rare Disease Day 2019

    Δημοσιεύτηκε: Feb 28th, 2019

    Thursday 28 February 2019 is Rare Disease Day. The PBC Foundation will be supporting Rare Disease Day by painting our faces in solidarity with rare disease patients around the world.  Our photo is of Natasha and David. Follow...
  • The National Lottery Community Fund

    The National Lottery Community Fund

    Δημοσιεύτηκε: Feb 25th, 2019

    We are delighted to have been awarded a grant from The National Lottery Community Fund, to hold a series of self-management workshops for people affected by PBC in Northern Ireland. We plan for the workshops to be held in the areas...
  • Healthcare begins with self-care – Introducing our new app

    Healthcare begins with self-care – Introducing our new app

    Δημοσιεύτηκε: Feb 18th, 2019

    We are pleased to announce the release of our new and improved app, which is available free to download on Apple and Android mobile devices. Here’s a selection of things you can do with the new features: ·        ...
  • Bear Facts magazine

    Bear Facts magazine

    Δημοσιεύτηκε: Feb 6th, 2019

    We are currently working on the final articles for the next issue of our Bear Facts magazine. Issue 85, the first of a new year will incorporate a new look, which we hope will appeal to our readers. Our content, we are sure you...
  • Happy New Year to All

    Happy New Year to All

    Δημοσιεύτηκε: Jan 16th, 2019

    We are very excited arranging our diaries for what we are sure will be a very busy year. We are delighted to let you know the brand new development of our app is nearing completion.  With so many of the new features you asked...
  • Seasonal Office Closure

    Seasonal Office Closure

    Δημοσιεύτηκε: Dec 18th, 2018

    Please note that the PBC Foundation office will be closed over the festive period. We close at noon on Friday 21st December and reopen at 9am on Thursday 3rd January, 2019. The helpline will remain open. The trustees, staff and volunteers...
  • Annual Raffle 2018

    Δημοσιεύτηκε: Dec 13th, 2018

    Our sincere thanks to everyone who participated in our Annual raffle this year. Congratulations to our prize winners who are: 1st prize: S Short, South Yorkshire 2nd prize: M Maton, Anglesey 3rd prize: G Lawrie, Aberdeenshire As...
  • Successes with Big Lottery Fund

    Successes with Big Lottery Fund

    Δημοσιεύτηκε: Dec 10th, 2018

    This year we have been delighted to receive grants from two funding streams of the Big Lottery Fund.   Awards for All England have donated £9,058 towards volunteer training and development.   Additionally, Awards for...
  • PBC The Bigger Picture: this November

    PBC The Bigger Picture: this November

    Δημοσιεύτηκε: Sep 27th, 2018

    Within just a few decades, we have seen remarkable progress in the understanding and treatment of PBC. Today, a normal life expectancy is finally achievable for many of those with PBC. However, despite the work of the PBC Foundation...
  • Thank You

    Thank You

    Δημοσιεύτηκε: Sep 14th, 2018

    Thank you to everyone who got involved with International PBC Day 2018. Whether you donated, attended an event, or put your ‘HandsUp4PBC’, your support really has made a difference. CEO of The PBC Foundation, Collette Thain...
  • International PBC Day 2018

    International PBC Day 2018

    Δημοσιεύτηκε: Aug 24th, 2018

    International PBC Day is on the 9th September, 2018. The pins on the below map represent the locations where PBC Day events are taking place:     Here is a more detailed breakdown of the events happening in the...
  • HandsUp4PBC

    HandsUp4PBC

    Δημοσιεύτηκε: Aug 8th, 2018

    We have now launched our 'HandsUp4PBC' campaign in the run-up to International PBC Day, 2018. Collette Thain, CEO of The PBC Foundation, has commenced the campaign with this short video: https://youtu.be/h8VM_0ngRFU
  • PBC Conferences 2018

    PBC Conferences 2018

    Δημοσιεύτηκε: Jul 26th, 2018

    We are delighted to announce the details of four PBC conferences to be held in 2018:      Please note that the conferences are open to members only. Additional family and friends are welcome. 
  • New Research Article

    New Research Article

    Δημοσιεύτηκε: Jul 16th, 2018

    The PBC Foundation is a co-author for the paper titled 'Pretreatment prediction of response to ursodeoxycholic acidin primary biliary cholangitis: development and validation of the UDCA Response Score'. Click the following link to...
  • Medical Advice and the PBC Foundation

    Δημοσιεύτηκε: Jul 12th, 2018

    One of the main aims of the Foundation is to support its members with information and advice. Medical Advice is provided by members of  the Medical Advisory Committee which consists of leading hepatologists from the UK and around...
  • International Classification of Diseases

    Δημοσιεύτηκε: Jun 20th, 2018

    The World Health Organization, (WHO) has reclassified PBC as DB96.1 Primary Biliary Cholangitis in ICD11. This is wonderful news for all concerned. To give it's full title, The International Statistical Classification of Diseases and...
  • Professor David Jones OBE

    Professor David Jones OBE

    Δημοσιεύτηκε: Jun 11th, 2018

    We are delighted share with you the news that Professor David Jones, of Newcastle University Institute of Cellular Medicine, has been awarded an OBE for services to Liver Disease and Training in the recent Queens Birthday Honour's...
  • GDPR

    Δημοσιεύτηκε: May 22nd, 2018

    In preparation for the introduction of new GDPR on 25th May 2018, we have updated our Privacy Policy.  Please click here to read: www.pbcfoundation.org.uk/information/privacy-policy
  • Remembering "Our Snoddy"

    Remembering "Our Snoddy"

    Δημοσιεύτηκε: May 4th, 2018

    It is with a touch of sadness but a huge glint in our eyes that today we remember the untimely passing ten years ago of our great friend and Collette’s late husband, Leslie Thain, also known as Snoddy.  Sadly missed, Snoddy’s...
  • PBC Golf Day 2018

    PBC Golf Day 2018

    Δημοσιεύτηκε: Apr 19th, 2018

    Our annual PBC Golf Day fundraising event takes place tomorrow, Friday 20th April at Prestonfield Golf Club in Edinburgh.  The course is in a beautiful location in the shadows of Arthur's Seat and this year the weather looks as...
  • Virgin Money London Marathon

    Δημοσιεύτηκε: Apr 19th, 2018

    Good luck to all our runners in this weekends Virgin Money London Marathon.  Clive Smith, Carley O'Brien, Dave Mylett, Becky Thomas, Eugene Loh and Ms Fanny Chinn are raising funds for the PBC Foundation and we send our grateful...
  • Annual Volunteer Conference

    Annual Volunteer Conference

    Δημοσιεύτηκε: Apr 11th, 2018

    Thank you to everyone who attended our 2018 Annual Volunteers Conference at the Edinburgh Marriott Hotel. The weekend was a resounding success and we enjoyed very informative presentations on new GDPR guidelines, EASL guidelines and...
  • Annual Volunteer Conference

    Annual Volunteer Conference

    Δημοσιεύτηκε: Apr 6th, 2018

    We look forward to welcoming our Volunteers and guests who are attending our 2018 Annual Volunteers Conference at the Marriott Hotel in Edinburgh this weekend.  We hope you all have an enjoyable and informative time.
  • Congratulations

    Congratulations

    Δημοσιεύτηκε: Mar 27th, 2018

    Many congratulations to our Cumbria Volunteer, Miriam Baird, who completed the Lune Vally Trek on Sunday 25 March 2018.  Miriam was accompanied by her husband Jeff, their dog Buddy and lastly but by no means least, Linda Butler,...
  • Grants Officer

    Grants Officer

    Δημοσιεύτηκε: Mar 23rd, 2018

    We are delighted to announce that Natasha Nayga has taken up the vacancy of Grants Officer.  We are sure you will join us in wishing Natasha every success in her new position.
  • PBC Golf Day 2018

    Δημοσιεύτηκε: Mar 13th, 2018

    Our Annual PBC Golf Fundraising day will again be held at Prestonfield Golf Club, Edinburgh on Friday 20th April. As in previous years the event is fully booked with 72 keen golfers taking to the fairways, come rain, hail or shine...
  • Grants Officer Vacancy

    Grants Officer Vacancy

    Δημοσιεύτηκε: Feb 27th, 2018

    Lead the fundraising efforts of a national charity with international reach We have a vacancy for a Grants Officer. This presents an exciting opportunity for anyone wishing to join our small, dynamic team in the heart of Edinburgh,...
  • Rare Disease Day 2018

    Δημοσιεύτηκε: Feb 20th, 2018

    Remember Rare Disease Day is coming up on 28th Feb. Primary Biliary Cholangitis (PBC) is just one such disease.  Together we can help raise awareness of these diseases, after all... Having a rare disease isn't that rare: 1 in...
  • Self Management Development Sessions

    Δημοσιεύτηκε: Feb 20th, 2018

    We are hosting a series of Self Management Development Sessions as detailed below: If you are interested in attending, please call the office on 0131 556 6811 or e-mail Linda@pbcfoundation.org.uk to book your place. Tuesday 20th...
  • Genfit - Clinical Trial for those with limited response to URSO

    Genfit - Clinical Trial for those with limited response to URSO

    Δημοσιεύτηκε: Jan 30th, 2018

    Are you interested in being involved in a clinical trial in Primary Biliary Cholangitis?  We are holding an investigational study in PBC for patients who have not experienced an adequate response with Ursodeoxycholic Acid (UDCA...
  • GSK - Clinical Research Study into itch in PBC

    GSK - Clinical Research Study into itch in PBC

    Δημοσιεύτηκε: Jan 30th, 2018

    GLIMMER - GSK 201000 Clinical Research Study in patients with itch due to Primary Biliary Cholangitis (PBC). The Study: GlaxoSmithKline (GSK) pharmaceuticals is running a study of a new treatment which we hope will improve itch for...
  • Genkyotex - Phase 2 Clinical Trial

    Genkyotex - Phase 2 Clinical Trial

    Δημοσιεύτηκε: Jan 30th, 2018

    “Genkyotex Initiates Patient Enrolment into Phase 2 Clinical Trial in Primary Biliary Cholangitis”   Genkyotex has begun enrolling patients into the Company’s Phase 2 clinical trial of its NOX1 and NOX4 enzymes...
  • We Have Moved Office

    Δημοσιεύτηκε: Jan 30th, 2018

    As reported in issue 80 of the Bear Facts magazine, the landlord of the York Place office served us with an eviction notice.  We have been working tirelessly over the last three weeks to move into our new office and we are delighted...
  • Annual Raffle Winners 2017

    Δημοσιεύτηκε: Dec 6th, 2017

    Our sincere thanks to all of you who sold your raffle tickets on behalf of the PBC Foundation.  The annual raffle was drawn on 17 November 2017 and the lucky winners were: First Prize       ...
  • Self-Management Development Session

    Δημοσιεύτηκε: Nov 16th, 2017

    SELF-DEVELOPMENT SESSION - LINCOLN Monday 4th December 2017 – 9.30am-3.30pm Holiday Inn Express Lincoln Ruston Way Brayford Business Park Lincoln LN6 7DB   SELF-DEVELOPMENT SESSION – BRADFORD Thursday 7th December...
  • Congratulations on reaching 21

    Δημοσιεύτηκε: Nov 7th, 2017

    Everyone at the PBC Foundation is delighted to announce that today we have reached our 21st birthday. Another year of providing support and information to help improve the lives of those who are affected by PBC has passed. We hope...
  • PBC App press release

    Δημοσιεύτηκε: Nov 2nd, 2017

      After the success that was #PBCday2017 the PBC Foundation has cemented the UK’s place in leading the field in patient care and self-management. Primary Biliary Cholangitis (PBC) is an incurable autoimmune condition which...
  • Grants Officer Vacancy

    Grants Officer Vacancy

    Δημοσιεύτηκε: Oct 19th, 2017

    Lead the fundraising efforts of a national charity with international reach After three years’ service our current Grants Officer is moving on. This presents an exciting opportunity for anyone wishing to join our small, dynamic...
  • International PBC Day 2017

    International PBC Day 2017

    Δημοσιεύτηκε: Sep 27th, 2017

    We would like to offer our deepest thanks and appreciation to everyone who gave their time in organising an event in support of International PBC Day 2017. The number of events increased to over 40 in the UK with many more worldwide...
  • BASL Meeting in Coventry

    BASL Meeting in Coventry

    Δημοσιεύτηκε: Sep 22nd, 2017

      Our CEO Collette Thain MBE, attended a meeting of British Association for the Study of the Liver (BASL) at the University of Warwick in Coventry yesterday.  Invited as a guest speaker by Intercept on the subject of Evolving...
  • Statement from the Medical Advisory Committee of PBC Foundation

    Δημοσιεύτηκε: Sep 21st, 2017

    Obeticholic acid (OCA) has recently been licenced in the UK and many other countries around the world for the treatment of people with PBC and is used in those who have not fully responded to or who are intolerant of Ursodeoxycholic...
  • Nursing in Practice (NIP)and Best Practice

    Δημοσιεύτηκε: Sep 19th, 2017

    We will be attending the following Nursing in Practice and Best Practice events where we will have the opportunity to distribute our information to nurses, exhibitors and other attendees to raise further awareness of PBC.  Please...
  • Edinburgh Kiltwalk

    Edinburgh Kiltwalk

    Δημοσιεύτηκε: Sep 19th, 2017

    On Sunday 17th September, the chairman of our board, Adrian Innes and his two colleagues, Thomas and Riley, set off to walk through Edinburgh for the annual and gruelling 26 mile Kilt Walk event.   They successfully completed...
  • PBC Day Event Updates

    Δημοσιεύτηκε: Sep 7th, 2017

    Any updates pertaining to events being held on PBC Day will be posted below; Linlithgow: A Pedal for Scotland event is being held on the same day. This means that road closures affect the the town. Be aware that parking may be limited...
  • Donor Memorial Day : Edinburgh : 9th Sept

    Δημοσιεύτηκε: Sep 1st, 2017

    Liver Transplant Support UK, SC046155, invite you to join them at the Royal Botanic Garden Edinburgh, on Saturday 9th September, to remember our donors by visiting The National Memorial for Organ and Tissue Donors.  Please contact...
  • PBC Day 2017 - what's happening, where?

    Δημοσιεύτηκε: Aug 11th, 2017

    Click on the purple pins below for more details on events happening for PBC Day in your area.  To add your own event, fill in the form at this link: PBC Day 2017  
  • PBC Day 2017

    Δημοσιεύτηκε: Aug 10th, 2017

    PBC Day 2017 is fast approaching. As ever, the aim is to encourage "Movement As Medicine" by taking part in 30 minutes of cumulative activity throughout the day.  Could this year be the catalyst for a change in your life, as it...
  • Six stone lost in 15 months - Movement as Medicine transformation stories

    Δημοσιεύτηκε: Jul 20th, 2017

    Our aim, almost all of the time but especially on PBC Day, is to promote Movement as Medicine.  The idea that very modest levels of physical activity (30min cumulative per day) can have a marked impact upon your physical...
  • Patient Survey - Have your say

    Δημοσιεύτηκε: Jul 16th, 2017

    As ever, the wider professional world involved in seeking greater understanding of PBC (and developing treatment for it) is eager to seek your experience as patients.  Our collective voice, made possible by many individual contributions,...
  • 12 events in 12 months - Charity Fundraiser

    Δημοσιεύτηκε: Jun 2nd, 2017

    Jasmine has taken on a year of fundraising challenges for us, in memory of her mum. But there is no need for us to tell you about here efforts, instead we'll let her tell you in her own words (ans we'll update this page as she progresses).    12...
  • Alan takes on the West Highland Way

    Alan takes on the West Highland Way

    Δημοσιεύτηκε: May 24th, 2017

    Walking 96 miles across some of the most mountainous landscapes in the UK might not be everyone's idea of a lifetime aspiration, but for our Operations Manager, Alan, it most certainly was on the bucket list.  As motivation for...
  • 1000 survey responses in a weekend - Thank You

    1000 survey responses in a weekend - Thank You

    Δημοσιεύτηκε: May 2nd, 2017

    What a wonderful community we have. In response to our survey sent out last week, we received over 1000 responses in the space of a weekend. Even more impressive considering we only sent to email recipients on our database, so about...
  • PBC Conference Newcastle | 23rd June 2017

    PBC Conference Newcastle | 23rd June 2017

    Δημοσιεύτηκε: Apr 28th, 2017

    We're holding a PBC Conference in Newcastle on the 23rd June 2017.  Guest Speaker: Professor David Jones of Newcastle University To attend, download a booking form here: Newcastle Conference Booking Form.pdf
  • London Marathon 2018

    London Marathon 2018

    Δημοσιεύτηκε: Apr 24th, 2017

    The London Marathon is the premier running event in the world, with over 40000 people competing against themselves amidst some of the most recognisable landmarks on the planet.   we'll get a gallery of our 2017 entrants in here...
  • Annual Volunteers Conference 2017

    Annual Volunteers Conference 2017

    Δημοσιεύτηκε: Apr 5th, 2017

    We look forward to welcoming our Volunteers and guests who are attending our 2017 conference in Edinburgh this weekend.  
  • Webinars are go!

    Webinars are go!

    Δημοσιεύτηκε: Mar 15th, 2017

    Our series of Webinars are underway, but it isn't too late to join in. Previous webinar recordings are available in the videos page of our Members' section   Friday 17th March, 3pm GMT: Relaxation Techniques This webinar is exactly...
  • Obeticholic acid approved by NICE for the treatment of patients with PBC

    Obeticholic acid approved by NICE for the treatment of patients with PBC

    Δημοσιεύτηκε: Mar 2nd, 2017

    First new medication for Primary Biliary Cholangitis in nearly 20 years   The PBC Foundation today welcomes the news that the first new treatment for 20 years has become available for patients with PBC. Affecting 22,000 patients...
  • Rare Disease Day 2017

    Rare Disease Day 2017

    Δημοσιεύτηκε: Feb 28th, 2017

    On Rare Disease Day 2017 we are again reminded of the need to shine a spotlight on disease such as PBC and help the general public gain a better understanding. Despite it being the third most common cause of premature death in the...
  • PBC Webinars

    PBC Webinars

    Δημοσιεύτηκε: Feb 24th, 2017

    The PBC Foundation will be hosting a series of webinars over the next six weeks.  The webinars will be 2 hours in duration and will cover a range of subjects.  If you wish to attend, follow the links below to register your...
  • Glasgow Afternoon Tea

    Glasgow Afternoon Tea

    Δημοσιεύτηκε: Jan 10th, 2017

    You are invited to the PBC Foundation afternoon tea at the Millennium Hotel, George Square, Glasgow, G2 1DS on Sunday 29th January 2017 from 2pm-4pm.  Come and join our CEO Collette Thain,  volunteers and members of the...
  • The power of music

    The power of music

    Δημοσιεύτηκε: Jan 10th, 2017

    In our self-management workshops, we dedicate one session to how music can help you achieve a positive mindset. The sessions themselves go into much greater depth but essentially the principle is that if you are in a state of stress,...
  • Mini Self-Management Sessions in Wales coming soon...

    Δημοσιεύτηκε: Nov 16th, 2016

    Collette and Mhari will be out on the road delivering three mini self-management sessions in Wales, starting off in The County Hotel, Haverfordwest on Wednesday 30th November from 10am to 12pm.     Then later on the same...
  • Survey on itching

    Survey on itching

    Δημοσιεύτηκε: Nov 4th, 2016

    Health Research Associates, Inc. (HRA) is a private company based in Seattle that works in patient-reported outcomes research, mostly helping pharmaceutical companies develop the questionnaires they need for use in clinical trials. HRA...
  • International PBC Day 2016 - Roll of Honour

    International PBC Day 2016 - Roll of Honour

    Δημοσιεύτηκε: Sep 30th, 2016

    Another year and another great PBC Day. Each year it goes from strength to strength as an awareness raising tool. And the activities showed diversity, dedication and, in one notable case, no small amount of daring. Check out our Storify...
  • New research highlights public confusion about liver disease

    New research highlights public confusion about liver disease

    Δημοσιεύτηκε: Sep 8th, 2016

      New research shows 41% of people are unable to locate the liver despite it being the largest internal organ in the body While 94% of adults know that alcohol causes liver disease, more than half are unaware that immune system...
  • International PBC Day 2016

    International PBC Day 2016

    Δημοσιεύτηκε: Sep 5th, 2016

    Sunday 11th September   It is almost time for International PBC Day again and much is being done around the world to raise awareness of PBC and of the virtues of doing 30 minutes of activity per day. See the map...
  • Three Peaks for PBC

    Three Peaks for PBC

    Δημοσιεύτηκε: Aug 10th, 2016

    THREE PEAKS CHALLENGE The PBC Foundation would like to invite you to join them along with Intercept Pharmaceuticals to take part in the “Three Peaks Challenge” with the last peak being on September 11th ( International...
  • PBC Day Afternoon Tea

    PBC Day Afternoon Tea

    Δημοσιεύτηκε: Aug 10th, 2016

      You are invited to join the PBC Foundation for afternoon tea at the Old Waverley Hotel, 43 Princes Street, Edinburgh EH2 2BY on Sunday 11th September 2016 from 2pm-5pm. Come and join our volunteers and members of the PBC community...
  • Your chance to be heard : research participants needed

    Your chance to be heard : research participants needed

    Δημοσιεύτηκε: Aug 1st, 2016

    Your opportunity to take part in a study to research the patient experience of living with Primary Biliary Cholangitis (formerly known as Primary Biliary Cirrhosis). Download a larger copy of the study advert here: Patient recruitment...
  • Peebles coffee morning raises £600 for PBC Foundation

    Peebles coffee morning raises £600 for PBC Foundation

    Δημοσιεύτηκε: Jul 15th, 2016

    On Saturday, 9th July our Regional Volunteer for the Scottish Borders, Ena, hosted a coffee morning in the scenic town of Peebles in aid of the PBC Foundation.  The morning was very well attended, and all the team were kept on...
  • General News update: 8th July 2016

    General News update: 8th July 2016

    Δημοσιεύτηκε: Jul 8th, 2016

    Hello everyone.  You will have received your Spring 2016 edition of The Bear Facts and hopefully read it all by now? Hopefully you will have seen that The PBC Foundation is celebrating its 20th birthday this year.  This is...
  • It's your time

    It's your time

    Δημοσιεύτηκε: Jul 6th, 2016

    There have been many key developments for people with PBC over the years. Alongside the name change, there is a growing awareness of PBC in the medical and wider community. We are not claiming credit for this, but instead the collective...
  • General Update: 27th June 2016

    General Update: 27th June 2016

    Δημοσιεύτηκε: Jun 27th, 2016

    Hello all.  A wee update from myself on my training progress for International PBC Day. You will all be aware of our 20th Anniversary this year and to mark this we have a few events taking place. Firstly, we have International...
  • Belly dancing in the Black Country

    Belly dancing in the Black Country

    Δημοσιεύτηκε: Jun 14th, 2016

    New Year; a time of resolutions to be more active, to take up a new form of activity to improve health and lose a few festively induced pounds. While many people pound the pavements on bleak winter days to get their dose of exercise,...
  • Great North Run Places Available

    Great North Run Places Available

    Δημοσιεύτηκε: Jun 14th, 2016

    Should you wish to take on one of the friendliest, most popular challenges in the UK, we have five spaces available in the Great North Run this year. The event, which takes place in Newcastle/Gateshead on the 11th September this year,...
  • Self Management Workshop | Morpeth | 12th May 2016

    Δημοσιεύτηκε: May 6th, 2016

    We are hosting a self-management development session in Morpeth on Wednesday 11th May 2016.  The session will be from 9.30 till 3.30.  Friends and family are welcome, but we need you to confirm attendance so we can cater...
  • Self Management Workshop | Durham | 11th May 2016

    Δημοσιεύτηκε: May 6th, 2016

    We are hosting a self-management development session in Durham on Wednesday 11th May 2016.  The session will be from 9.30 till 3.30.  Friends and family are welcome, but we need you to confirm attendance so we can cater for...
  • Self Management Workshop | Darlington | 9th May 2016

    Δημοσιεύτηκε: May 6th, 2016

    We are hosting a self-management development session in Darlington on Monday 9th May 2016.  The session will be from 9.30 till 3.30.  Friends and family are welcome, but we need you to confirm attendance so we can cater for...
  • Self Management Workshop | Bedford | 19th May 2016

    Δημοσιεύτηκε: May 6th, 2016

    We are hosting a self-management development session in Bedford on Wednesday 19th May 2016.  The session will be from 9.30 till 3.30.  Friends and family are welcome, but we need you to confirm attendance so we can cater...
  • Self Management Workshop | Dumfries | 10th May 2016

    Self Management Workshop | Dumfries | 10th May 2016

    Δημοσιεύτηκε: Apr 29th, 2016

    We are hosting self-management development sessions in Dumfries on Tuesday 10th May 2016.  The session will be from 9.30 till 3.30.  Friends and family are welcome, but we need you to confirm attendance so we can cater for...
  • Self Management Workshop | Carlisle | 9th May 2016

    Self Management Workshop | Carlisle | 9th May 2016

    Δημοσιεύτηκε: Apr 29th, 2016

    We are hosting self-management development sessions in Carlisle on Monday 9th May 2016.  The session will be from 9.30 till 3.30.  Friends and family are welcome, but we need you to confirm attendance so we can cater for...
  • Self Management Workshop | Ayr | 11th May 2016

    Self Management Workshop | Ayr | 11th May 2016

    Δημοσιεύτηκε: Apr 29th, 2016

      We are hosting self-management development sessions in Ayr on Wednesday 11th May 2016.  The session will be from 9.30 till 3.30.  Friends and family are welcome, but we need you to confirm attendance so we can cater...
  • London Conference 2016

    London Conference 2016

    Δημοσιεύτηκε: Apr 29th, 2016

    Saturday 21 May 2016    The PBC Foundation is holding a conference in London, hosted by the Royal Free Hospital, on Sat 21st March Itinerary 11.00am         Registration 11.15am        ...
  • Meeting in Birmingham | April 5th, 2016

    Meeting in Birmingham | April 5th, 2016

    Δημοσιεύτηκε: Apr 1st, 2016

      On Tuesday 5th April our volunteer, Diane, is holding a meeting in Birmingham. So if you live nearby or happen to be in the area, do pop along.  PBC Foundation Meeting in Birmingham Diane (Regional Volunteer...
  • Meetings in London and Chester | 19th March 2016

    Meetings in London and Chester | 19th March 2016

    Δημοσιεύτηκε: Mar 14th, 2016

    On Saturday 19th two of our volunteers are holding meetings in their local areas. So if you live nearby or happen to be in the area, do pop along.  PBC Foundation Meeting in London Goksel (Regional Volunteer for...
  • International Women's Day

    International Women's Day

    Δημοσιεύτηκε: Mar 8th, 2016

    Today is International Women's Day. You probably already know this as every single organisation and public figure will have mentioned it. We are no different in that respect but what do we have to say that is so appropriate on a day...
  • Esther's Story

    Esther's Story

    Δημοσιεύτηκε: Feb 29th, 2016

    Esther is the regional volunteer for the Edinburgh area. On Rare Disease Day, take a few minutes to hear her story, from first learning of the disease on diagnosis, through spending time in hospital, to taking control of her own health...
  • Patient Power  |  Rare Disease Day 2016

    Patient Power | Rare Disease Day 2016

    Δημοσιεύτηκε: Feb 29th, 2016

    Although most people may associate 29th February as being that rare day when women traditionally propose marriage to men, the date this year marks something far more meaningful for many of us, though it’s equally as ‘rare’....
  • Meetings in Middlesbrough and Colwyn Bay | 27th February 2016

    Meetings in Middlesbrough and Colwyn Bay | 27th February 2016

    Δημοσιεύτηκε: Feb 23rd, 2016

    On Saturday 27th two of our volunteers are holding meetings in their local areas. So if you live nearby or happen to be in the area, do pop along.  PBC Foundation Meeting in Middlesbrough Lynn Robson (Regional Volunteer for Cleveland)...
  • Meeting in Pembrokeshire | February 13th 2016

    Meeting in Pembrokeshire | February 13th 2016

    Δημοσιεύτηκε: Feb 3rd, 2016

    Our Volunteer Jacqueline Aitken is hosting a meeting in Dyfed for our service users on Saturday 13th February 2016 from 2pm-4pm at the following venue:- CAFÉ RIO 19-21 QUAY STREET HAVERFORD WEST DYFED SA61 1BG These meetings...
  • Volunteer Opportunity | Edinburgh Office | Fundraising

    Volunteer Opportunity | Edinburgh Office | Fundraising

    Δημοσιεύτηκε: Jan 14th, 2016

    The PBC Foundation is a small organisation in terms of staff and turnover, yet we have a global demand for our information and services. Currently the bulk of the fundraising responsibility sits with one member of staff. We are offering...
  • Self Management Workshop | St Andrews, Scotland

    Self Management Workshop | St Andrews, Scotland

    Δημοσιεύτηκε: Jan 11th, 2016

    Self Management Workshop  |  St Andrews, Scotland  |  26th January 2016 We are hosting a self-management development session in St Andrews on Tuesday 26th January 2016.  The session will be from 9.30am-3.30pm. ...
  • Outward Bound

    Outward Bound

    Δημοσιεύτηκε: Dec 18th, 2015

    Outward Bound Loch Eil 9th – 11th October 2015-10-22 The Foundation was delighted to pilot the first ever Outward Bound weekend for the children, grandchildren, nieces and nephews of our registered service users. The Loch Eil...
  • EASL Milan

    EASL Milan

    Δημοσιεύτηκε: Jun 27th, 2014

    We are delighted to share with you the presentation made by Robert at the EASL monothematic PBC Conference in Milan in May 2014.  The presentation was to argue the case for changing the name "Primary Biliary Cirrhosis." ...