La Fondazione PBC è l'unica organizzazione sede nel Regno Unito che si occupa specificamente con PBC.
Che differenza può fare
Our feedback illustrates that our work is making a real positive difference to the lives of PBC sufferers. Here is what our members have recently told us about our services:
On finding our organisation:
“Though my diagnosis was only three months ago, I’m now feeling pretty positive about what the future may hold after joining the Foundation. My [medical expert] gave me very little information and having never heard of this condition until shortly before diagnosis, I was very frightened, especially accessing the horror stories on the internet. Fortunately, I came across your website and The PBC Foundation has been paramount in putting my thoughts and symptoms into perspective”.
On our publications:
“I developed PBC fifteen years ago and I was totally devastated, mostly because I had never heard of this disease and no one really knew much about it. Since then I have learnt to live with it and feel ‘quite normal’ sometimes. I can honestly say that without The Bear Facts it would have been very hard”.
“I know a number of people who suffer from other conditions and none of them have received anything like (our compendium) to support them. When I let them see what I received, they are very impressed by the variety of information in it. I really do find the compendium a fantastic publication”.