Latest Message from our CEO
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Collette's Vlog

The PBC Foundation is the only UK based organisation that specifically deals with PBC.

Latest Message from our CEO

Latest Message from our CEO

To view the latest message from our CEO, Collette Thain MBE, please click Here  Collette talks about the importance of having your voice heard in the world of research and our latest Patient Experience Survey on the mobile PBC App, gives you such an opportunity.  Please help us to help you.

Further details of the survey and how to access the App are below.

The PBC Foundation is working hard on your behalf to improve the treatment and care you receive. To this end, it is vital that we understand the patient experience of the PBC clinical journey to identify your unmet needs.  We are asking for your help with this endeavour by participating in our new Patient Experience mobile app survey.  

We have another opportunity to speak with a collective voice.  We can amplify your voice: but first we need you to tell us your story. Participate in our new Patient Experience Survey and be involved in our latest campaign to improve the lives of everyone with PBC.

If you are not yet a member of the PBC Foundation, please join us by clicking here and complete the on-line registration form to receive your username and instructions to create your password to access the PBC App to complete the survey.

If you are already a member and need a reminder or reset of your username and password, please email

You can download the App from your own app store or by clicking these links:

Apple device:  

Android device: