The PBC Foundation is the only UK based organisation that specifically deals with PBC.
Esther is the regional volunteer for the Edinburgh area. On Rare Disease Day, take a few minutes to hear her story, from first learning of the disease on diagnosis, through spending time in hospital, to taking control of her own health again and deciding to help others.
Share her story on Twitter
If you found her story interesting and you use Twitter, do like or retweet her story using the embedded tweet below;