Latest News
This latest news is all about the App and your opportunity to get involved!!
Esther's Story
Esther is the regional volunteer for the Edinburgh area. On Rare Disease Day, take a few minutes to hear her story, from first learning of the disease on diagnosis, through spending time in hospital, to taking control of her own health again and deciding to help others.
Share her story on Twitter
If you found her story interesting and you use Twitter, do like or retweet her story using the embedded tweet below;
On #rarediseaseday we'd like to share Esther's story with you - from being diagnosed to taking back control https://t.co/8ewsCxq5hq … Pls RT
— The PBC Foundation (@PBCFoundation) February 29, 2016
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