Spotlight on Rare Diseases
Share this page

Latest News

All the latest PBC Foundation news; events, announcements, surveys, and more.

Spotlight on Rare Diseases

Spotlight on Rare Diseases

Currently, there are between 6,000 and 8,000 rare diseases and it is estimated that 3.5 million people in the UK will be affected by a rare disease during their lives. Despite the scale of the issue, over 90% of know rare diseases still lack an effective treatment. AMRC have published a report to highlight the incredible work charities are doing to make a difference for those affected by rare diseases in the UK. To view the report, please click on the link below:

https://www.amrc.org.uk/spotlight-on-rare-diseases