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Latest News

All the latest PBC Foundation news; events, announcements, surveys, and more.

Latest News

Latest News

Thank you, thank you, thank you.

There are a huge number of you who have already contributed to the App, and you are amazing. Already you have made a huge difference (details below).

For those of you who haven't downloaded the App yet, please do so. There are a huge number of benefits for you:

1) Information including clinical guidelines, FAQs, our compendium "Living with PBC" and a glossary of terms to ensure you have all the information you need.

2) Self-management tools such as test trackers, symptom trackers, weight/dose of Urso trackers, links to helpful information, and interactive tools to help you each and every day.

3) Surveys are there to learn about your experience. The surveys generate collective, anonymised data which tell us what percentage of people are on Urso, on the appropriate dose of Urso, seeing a hepatologist or a gastro, or how many people have certain symptoms.

Already, this data is being shared at important national and international conferences.  As an example, there is now a nationwide UK audit of PBC services to see how many patients do or do not receive the recommended care. This audit will then guide the improvement in patient services. One of the major drivers that convinced clinicians for the need of this audit was a piece sharing the data from the App.

You can download the App from your own app store or you can use these links.

Apple device:
Android device:

You can watch our CEO, Collette Thain MBE, introduce the app here:

The revolution is coming. And we are the answer.

So please, please, please fill in these surveys, use the app, be the solution: not just for our generation, but for countless others after us.

The answer is out there. We have to ask the right people the right questions. You are the right people! 

  • General Update: 27th June 2016

    General Update: 27th June 2016

    Posted: Jun 27th, 2016

    Hello all.  A wee update from myself on my training progress for International PBC Day. You will all be aware of our 20th Anniversary this year and to mark this we have a few events taking place. Firstly, we have International...
  • Belly dancing in the Black Country

    Belly dancing in the Black Country

    Posted: Jun 14th, 2016

    New Year; a time of resolutions to be more active, to take up a new form of activity to improve health and lose a few festively induced pounds. While many people pound the pavements on bleak winter days to get their dose of exercise,...
  • Great North Run Places Available

    Great North Run Places Available

    Posted: Jun 14th, 2016

    Should you wish to take on one of the friendliest, most popular challenges in the UK, we have five spaces available in the Great North Run this year. The event, which takes place in Newcastle/Gateshead on the 11th September this year,...