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Latest News

All the latest PBC Foundation news; events, announcements, surveys, and more.

Latest News

Latest News

Thank you, thank you, thank you.

There are a huge number of you who have already contributed to the App, and you are amazing. Already you have made a huge difference (details below).

For those of you who haven't downloaded the App yet, please do so. There are a huge number of benefits for you:

1) Information including clinical guidelines, FAQs, our compendium "Living with PBC" and a glossary of terms to ensure you have all the information you need.

2) Self-management tools such as test trackers, symptom trackers, weight/dose of Urso trackers, links to helpful information, and interactive tools to help you each and every day.

3) Surveys are there to learn about your experience. The surveys generate collective, anonymised data which tell us what percentage of people are on Urso, on the appropriate dose of Urso, seeing a hepatologist or a gastro, or how many people have certain symptoms.

Already, this data is being shared at important national and international conferences.  As an example, there is now a nationwide UK audit of PBC services to see how many patients do or do not receive the recommended care. This audit will then guide the improvement in patient services. One of the major drivers that convinced clinicians for the need of this audit was a piece sharing the data from the App.

You can download the App from your own app store or you can use these links.

Apple device:
Android device:

You can watch our CEO, Collette Thain MBE, introduce the app here:

The revolution is coming. And we are the answer.

So please, please, please fill in these surveys, use the app, be the solution: not just for our generation, but for countless others after us.

The answer is out there. We have to ask the right people the right questions. You are the right people! 

  • Peebles coffee morning raises £600 for PBC Foundation

    Peebles coffee morning raises £600 for PBC Foundation

    Posted: Jul 15th, 2016

    On Saturday, 9th July our Regional Volunteer for the Scottish Borders, Ena, hosted a coffee morning in the scenic town of Peebles in aid of the PBC Foundation.  The morning was very well attended, and all the team were kept on...
  • General News update: 8th July 2016

    General News update: 8th July 2016

    Posted: Jul 8th, 2016

    Hello everyone.  You will have received your Spring 2016 edition of The Bear Facts and hopefully read it all by now? Hopefully you will have seen that The PBC Foundation is celebrating its 20th birthday this year.  This is...
  • It's your time

    It's your time

    Posted: Jul 6th, 2016

    There have been many key developments for people with PBC over the years. Alongside the name change, there is a growing awareness of PBC in the medical and wider community. We are not claiming credit for this, but instead the collective...