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Latest News

All the latest PBC Foundation news; events, announcements, surveys, and more.

Latest News

Latest News

Thank you, thank you, thank you.

There are a huge number of you who have already contributed to the App, and you are amazing. Already you have made a huge difference (details below).

For those of you who haven't downloaded the App yet, please do so. There are a huge number of benefits for you:

1) Information including clinical guidelines, FAQs, our compendium "Living with PBC" and a glossary of terms to ensure you have all the information you need.

2) Self-management tools such as test trackers, symptom trackers, weight/dose of Urso trackers, links to helpful information, and interactive tools to help you each and every day.

3) Surveys are there to learn about your experience. The surveys generate collective, anonymised data which tell us what percentage of people are on Urso, on the appropriate dose of Urso, seeing a hepatologist or a gastro, or how many people have certain symptoms.

Already, this data is being shared at important national and international conferences.  As an example, there is now a nationwide UK audit of PBC services to see how many patients do or do not receive the recommended care. This audit will then guide the improvement in patient services. One of the major drivers that convinced clinicians for the need of this audit was a piece sharing the data from the App.

You can download the App from your own app store or you can use these links.

Apple device:
Android device:

You can watch our CEO, Collette Thain MBE, introduce the app here:

The revolution is coming. And we are the answer.

So please, please, please fill in these surveys, use the app, be the solution: not just for our generation, but for countless others after us.

The answer is out there. We have to ask the right people the right questions. You are the right people! 

  • Self-Management Development Session

    Posted: Nov 16th, 2017

    SELF-DEVELOPMENT SESSION - LINCOLN Monday 4th December 2017 – 9.30am-3.30pm Holiday Inn Express Lincoln Ruston Way Brayford Business Park Lincoln LN6 7DB   SELF-DEVELOPMENT SESSION – BRADFORD Thursday 7th December...
  • Congratulations on reaching 21

    Posted: Nov 7th, 2017

    Everyone at the PBC Foundation is delighted to announce that today we have reached our 21st birthday. Another year of providing support and information to help improve the lives of those who are affected by PBC has passed. We hope...
  • PBC App press release

    Posted: Nov 2nd, 2017

      After the success that was #PBCday2017 the PBC Foundation has cemented the UK’s place in leading the field in patient care and self-management. Primary Biliary Cholangitis (PBC) is an incurable autoimmune condition which...