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Latest News

All the latest PBC Foundation news; events, announcements, surveys, and more.

Latest News

Latest News

Thank you, thank you, thank you.

There are a huge number of you who have already contributed to the App, and you are amazing. Already you have made a huge difference (details below).

For those of you who haven't downloaded the App yet, please do so. There are a huge number of benefits for you:

1) Information including clinical guidelines, FAQs, our compendium "Living with PBC" and a glossary of terms to ensure you have all the information you need.

2) Self-management tools such as test trackers, symptom trackers, weight/dose of Urso trackers, links to helpful information, and interactive tools to help you each and every day.

3) Surveys are there to learn about your experience. The surveys generate collective, anonymised data which tell us what percentage of people are on Urso, on the appropriate dose of Urso, seeing a hepatologist or a gastro, or how many people have certain symptoms.

Already, this data is being shared at important national and international conferences.  As an example, there is now a nationwide UK audit of PBC services to see how many patients do or do not receive the recommended care. This audit will then guide the improvement in patient services. One of the major drivers that convinced clinicians for the need of this audit was a piece sharing the data from the App.

You can download the App from your own app store or you can use these links.

Apple device:
Android device:

You can watch our CEO, Collette Thain MBE, introduce the app here:

The revolution is coming. And we are the answer.

So please, please, please fill in these surveys, use the app, be the solution: not just for our generation, but for countless others after us.

The answer is out there. We have to ask the right people the right questions. You are the right people! 

  • Congratulations


    Posted: Mar 27th, 2018

    Many congratulations to our Cumbria Volunteer, Miriam Baird, who completed the Lune Vally Trek on Sunday 25 March 2018.  Miriam was accompanied by her husband Jeff, their dog Buddy and lastly but by no means least, Linda Butler,...
  • Grants Officer

    Grants Officer

    Posted: Mar 23rd, 2018

    We are delighted to announce that Natasha Nayga has taken up the vacancy of Grants Officer.  We are sure you will join us in wishing Natasha every success in her new position.
  • PBC Golf Day 2018

    Posted: Mar 13th, 2018

    Our Annual PBC Golf Fundraising day will again be held at Prestonfield Golf Club, Edinburgh on Friday 20th April. As in previous years the event is fully booked with 72 keen golfers taking to the fairways, come rain, hail or shine...