The PBC Foundation is the only UK based organisation that specifically deals with PBC.
Virgin Money London Marathon
London Marathon 2020
The marathon has now been postponed until October 2021 and our brilliant runners will continue to train to be match fit for the big event. Three of our runners will be taking on an extra challenge and running the marathon virtually on the 4th of October for the Foundation.
The Foundation is in awe of the incredible dedication and hard work of these individuals, many of whom have been affected by PBC on a personal level. We are very humbled that they have chosen to raise much needed funds to help the Foundation continue to support its many members. Here are the links to their fundraising pages and their moving, emotional and truly inspiring stories.
Are you looking to set yourself a challenge or get out for a good walk on PBC Day?
If so we have got good news for you.
The Kiltwalk has gone virtual and will be running over the weekend of the 11th – 13th of September
Why not register to take part on behalf of the Foundation?
Collette and Linda will be walking up and around Arthurs Seat in Edinburgh on Sunday the 13th of September. We will starting at 2.30pm and meeting at the ice cream van opposite the car park in Holyrood Park. Feel free to come along and join us.
Good news is you do not have to be in Edinburgh to take part in this years Kiltwalk event. You can set yourself a walk or cycle challenge in your local park or get together with your local group or friends.
You can take on any Kiltwalk inspired challenge you wish - go for a walk (of any length), a cycle, a jump on a trampoline or even a family scavenger hunt!
Why not register to take part on behalf of the Foundation. You can set your own target distance or challenge and any money raise funds through your Kiltwalk page will receive a 50% top up from the Hunter Foundation.
To donate please click on the link below;
Or if you wish to take part click link to the team page and hit the brown button ‘Join the team’ to register and set up your page.
The 2.6 Challenge
Thank you to all who participated in the 2.6 Challenge in support of the PBC Foundation. We are overwhelmed by the response and support received from donors. We have, so far, raised a fantastic amount which will enable us to continue to support our members during the Covid -19 pandemic.
A list of participants and their challenges are detailed below. Full details of the challenges and amounts raised will be published in the next edition of the Bear Facts Magazine.
Anyone wishing to support the participants who still have live fundraising pages, please click the links below. Alternatively if you wish to donate direct to the Foundation, you can do so here : https://www.pbcfoundation.org.uk/support-us/donate/step-one
Steve Bates – a 26 mile cycle to the peak of the Moorfoot Hills and back.
The Shepherds - Cycling in multiples of 2.6 miles and baking 26 cakes.
Alison Sutherland - Walked 2.6 miles (actually did 3.5miles)
Tracey Pawley – 26 Wii Fit Activities
Kim Brown - Running a marathon over 5 days
Mary Ferry - walking 2.6 miles each day
Collette Thain MBE – Sang 26 Songs
Ruth Ehrlich - Walked a marathon over 5 days
Esther Davidson - Walked 2.6 miles a day for a week
Jasmin Jewell - Given up drinking for 26 days to show solidarity and support
Jaki Smith - Cycled 26 miles over 5 days
David White - and friends skipped for 2.6 minutes
Stephanie Bottin - Walked 2.6 miles a day for a week
Diane Reeves - Held a raffle to win 2 sets of 6 crocheted coasters
Gill Rich - Walked faster and longer on each daily walk. Husband did 26 chores in 2.6days
Ann Witham - Walked 2.6 miles
Join The 2.6 Challenge
The Covid-19 pandemic has had a devastating effect on charities, with the cancellation of thousands of events and the loss of billions in fundraising income.
The PBC Foundation are experiencing a quadruple demand for up to date information and support. To address this need we are providing a wider range of services through our helpline and social media platforms, including webinars and vlogs.
We are facing a huge drop in income in these unprecedented times and, like all charities, we need your help!
The organisers of the biggest mass-participation sports events across the country have come together to create a new campaign to raise vital funds to help to save the UK’s charities.
Please take part in an activity of your choice based around the numbers 2.6 or 26 and fundraise or donate to support The PBC Foundation via https://www.twopointsixchallenge.co.uk/
People of all ages are taking on The 2.6 Challenge with a host of activities – from walking, running or cycling 2.6 miles, juggling for 2.6 minutes, to holding online workouts with 26 friends. The ideas and options are endless!
The only requirement is that you must follow Government guidelines on exercise and social distancing. Most people are taking part from Sunday 26 April but you can do your activity whenever is most convenient for you.
There are just five simple steps to take:
1. Dream up your 2.6 challenge – if you need help there are lots of ideas at https://www.twopointsixchallenge.co.uk/inspiration.html
2. Head to https://www.twopointsixchallenge.co.uk to donate £26 – or whatever you can afford – to The PBC Foundation or to set up a fundraising page.
3. Ask all your friends and family to sponsor you and challenge them to do their own 2.6 Challenge
4. Complete your challenge
5. Share a photo or video of your challenge on social media with #TwoPointSixChallenge
For further information on The 2.6 Challenge, including a list of partners and supporters, and for more ideas about what your activity could be, visit https://www.twopointsixchallenge.co.uk/
We hope you’ll join the nation in The 2.6 Challenge to support The PBC Foundation and help to save the UK’s charities.
Virgin Money London Marathon 2020
The PBC Foundation is delighted to announce that we have seven wonderful runners competing in the London Marathon 2020 in aid of PBC. We wish each of them the best of luck with not only their challenge but with the tough few months of training ahead. We hope all of our members can get behind them and help raise as much money as possible. The Foundation is in awe of the incredible dedication and hard work of these brave individuals, many of whom have been affected by PBC on a personal level. We are very humbled that they have chosen to raise much needed funds to help the Foundation continue to support its many members. Here are the links to their fundraising pages and their moving, emotional and truly inspiring stories.
Ceri is running to help raise awareness and support and hopes that one day a cure can be found. Ceri’s mum has now received two liver transplants.
David’s mum was diagnosed with PBC in 2012. He says ‘the Foundation was and still is a great source of information and support for the entire family’. Since 2012, he been raising funds and awareness of the condition and the Foundation.
Luke is running the marathon in memory of his late mother. He aims to help other people benefit from the great work the PBC foundation do.
Kiel’s mum suffered with the disease for 12 years before having a liver transplant. Thankfully she has made a full recovery and has been fine ever since. ‘If it wasn't for the dedication of the PBC Foundation, the many people behind it and their research his mum may not have been with us today’.
‘Having seen the affects this condition causes and the memory of my beautiful late mother who passed away early in 2018, it gives me a drive that comes from above to give some time up and prepare for the London marathon so that others may join me and help the PBC Foundation raise funds for their honest and supporting charity that really helps research and gives support for PBC sufferers’.
Michelle was always a healthy and active person, so when she couldn’t even run to the end of her street, she knew something was wrong. Michelle health deteriorated very quickly and she received a transplant in 2014. Thankfully Michelle is recovered and competes regularly in such events.
Our small County Antrim group helps relieve the isolation and anxiety caused by this rare disease.
This year we are taking on a great challenge and have entered a relay team into the Belfast marathon on the 3rd of May.
If you can manage it please help us raise much-needed funds to help support the excellent work of the PBC Foundation. Click here to visit their page:
Meet the Team:
June and Ray Burbage
June is a member of the Foundation and is the team captain. She and her lovely husband Ray will each be running a leg of the relay. June is committed to raising awareness and funds for the PBC Foundation.
Andrew and Ruth Tyrrell
Andrew, a joiner from Carrickfergus, has kindly volunteered to be part of the relay team. He understands the debilitating effects that PBC can have on sufferers and their immediate families. Ruth, Andrew's wife, is a member of the PBC Foundation. They both appreciate the invaluable help and support that the Foundation offers to its members.
Sandra and Hannah Dallas
Mother Sandra and daughter Hannah are the final two members of the relay team. Sandra was diagnosed with PBC last summer and is a member of the Foundation. "We would love to help the PBC Foundation to continue to work with those affected and seek to find new treatments to ease the debilitating symptoms of this rare condition. Please help us to raise the much needed funds for this to happen."
The local Spar shop in Ballycastle is also helping to raise money by supporting the Co. Antrim relay team. So if you live near, get on down and show your support.
International PBC Day
On the second Sunday of each September, our members and volunteers host a variety of events in their local area to raise funds and awareness of PBC for us. To find out what’s going on in your area on International PBC Day, please visit our meetings section.
Virgin Money London Marathon
Each year, the Foundation has five places in the Virgin Money London Marathon to distribute to our supporters. This year's race, in which we have seven places due to two runners being unable to participate in 2019, is being held on Sunday the 26th of April 2020, so why not come along to support our runners, or sponsor them? To enquire about our waiting list for the 2021 event, please email our Grants Officer on firstname.lastname@example.org. Due to the limited number of places, we can only offer places to those who are able to raise over £1,000.
Annual Winter Raffle
Each November, we draw a raffle for our members, the first prize of which is £400. Tickets are usually enclosed with the May issue of “The Bear Facts” magazine - if you sell out, please contact us, as there may be more available.
There are plenty of other events throughout the year that you can get involved with. For example, you could:
Enter half marathon “The Great North Run”
Cycle in “Pedal for Scotland”
Participate in obstacle course “Tough Mudder”