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The PBC Foundation is the only UK based organisation that specifically deals with PBC.



Virgin Money London Marathon 2020

The PBC Foundation is delighted to announce that we have seven wonderful runners competing in the London Marathon 2020 in aid of PBC. We wish each of them the best of luck with not only their challenge but with the tough few months of training ahead. We hope all of our members can get behind them and help raise as much money as possible. The Foundation is in awe of the incredible dedication and hard work of these brave individuals, many of whom have been affected by PBC on a personal level. We are very humbled that they have chosen to raise much needed funds to help the Foundation continue to support its many members. Here are the links to their fundraising pages and their moving, emotional and truly inspiring stories.

Ceri Chapman

Ceri is running to help raise awareness and support and hopes that one day a cure can be found. Ceri’s mum has now received two liver transplants.

David White

David’s mum was diagnosed with PBC in 2012. He says ‘the Foundation was and still is a great source of information and support for the entire family’.  Since 2012, he been raising funds and awareness of the condition and the Foundation.

Ronan Hennessy

Luke Weller 

Luke is running the marathon in memory of his late mother. He aims to help other people benefit from the great work the PBC foundation do. 

Kiel Chandler

Kiel’s mum suffered with the disease for 12 years before having a liver transplant. Thankfully she has made a full recovery and has been fine ever since. ‘If it wasn't for the dedication of the PBC Foundation, the many people behind it and their research his mum may not have been with us today’.

Ryan Cunningham

‘Having seen the affects this condition causes and the memory of my beautiful late mother who passed away early in 2018, it gives me a drive that comes from above to give some time up and prepare for the London marathon so that others may join me and help the PBC Foundation  raise funds for their honest and supporting charity that really helps research and gives support for PBC sufferers’.

Michelle Mitchell

Michelle was always a healthy and active person, so when she couldn’t even run to the end of her street, she knew something was wrong. Michelle health deteriorated very quickly and she received a transplant in 2014. Thankfully Michelle is recovered and competes regularly in such events.



Our small County Antrim group helps relieve the isolation and anxiety caused by this rare disease.

This year we are taking on a great challenge and have entered a relay team into the Belfast marathon on the 3rd of May.

If you can manage it please help us raise much-needed funds to help support the excellent work of the PBC Foundation.  Click here to visit their page:

Meet the Team:

June and Ray Burbage 

June is a member of the Foundation and is the team captain. She and her lovely husband Ray will each be running a leg of the relay. June is committed to raising awareness and funds for the PBC Foundation.

Andrew and Ruth Tyrrell

Andrew, a joiner from Carrickfergus, has kindly volunteered to be part of the relay team. He understands the debilitating effects that PBC can have on sufferers and their immediate families. Ruth, Andrew's wife, is a member of the PBC Foundation. They both appreciate the invaluable help and support that the Foundation offers to its members.

Sandra and Hannah Dallas

Mother Sandra and daughter Hannah are the final two members of the relay team. Sandra was diagnosed with PBC last summer and is a member of the Foundation. "We would love to help the PBC Foundation to continue to work with those affected and seek to find new treatments to ease the debilitating symptoms of this rare condition. Please help us to raise the much needed funds for this to happen."

The local Spar shop in Ballycastle is also helping to raise money by supporting the Co. Antrim relay team. So if you live near, get on down and show your support.




Anne Goudie here, your volunteer for Glasgow and surrounding areas.  I am hoping to get a group of us together (the more the merrier) to fundraise for the Foundation by taking part in the Glasgow “Kiltwalk” this year.  It is on Sunday 26th April 2020 and there are 3 options for the walk of 23, 15 and 6 miles.  The Foundation is recommending the 6 miles as it is probably achievable for most of us.  The Hunter Foundation (Tom Hunter) will donate an additional 40% of all cash raised!! Included in the entry fee are snacks/drinks along the way, a hot meal at the end and support and first aid if required.

The entry fee is:-

23 miles - £31.69

15 miles - £31.69

  6 miles - £12.80

Free entry for children aged 5 and under and you can even bring your dog, please note all dogs must be kept on a lead.

If you feel this is something you could do, please let me know asap and before 28th February.  This will allow me to register us as a group.

Sponsorship forms will be provided.

Please reply directly to me on:- or text to 07872 335518

The PBC Foundation provides us with so much and right now it needs our support.

Thank you

International PBC Day

On the second Sunday of each September, our members and volunteers host a variety of events in their local area to raise funds and awareness of PBC for us.  To find out what’s going on in your area on International PBC Day, please visit our meetings section.

Virgin Money London Marathon

Each year, the Foundation has five places in the Virgin Money London Marathon to distribute to our supporters.  This year's race, in which we have seven places due to two runners being unable to participate in 2019, is being held on Sunday the 26th of April 2020, so why not come along to support our runners, or sponsor them? To enquire about our waiting list for the 2021 event, please email our Grants Officer on  Due to the limited number of places, we can only offer places to those who are able to raise over £1,000.

Annual Winter Raffle

Each November, we draw a raffle for our members, the first prize of which is £400.  Tickets are usually enclosed with the May issue of “The Bear Facts” magazine - if you sell out, please contact us, as there may be more available. 

Other Events

There are plenty of other events throughout the year that you can get involved with.  For example, you could:

Enter half marathon “The Great North Run”

Cycle in “Pedal for Scotland”

Participate in obstacle course “Tough Mudder”