When it comes to living with
PBC, there’s a bigger picture.
We aim to help every person affected by PBC live the best life possible. It all comes down to recognising the importance of three things: treatment, lifestyle and support.
Become a member of the PBC Foundation (it’s free) and make sure you’re logged in to
access all the links on this page.
There’s no better person to manage your care than the person who knows you best – you.
From dosage to formulation, your treatment should be fully personalised. When you’re diagnosed with PBC, you’re almost certainly prescribed UDCA straight away. It can be a lifesaving treatment, but it only works properly when you take the right dose for your bodyweight, which can fluctuate up or down. There is also a small percentage of people who don’t fully respond to UDCA and might be offered another option.
Sharing responsibility with your clinician by being actively involved in your treatment helps make sure you’re always getting the best care.
The PBC Foundation app helps you track your moods, symptoms, and test results over time
Download this dosage calculator app to check you’re getting the right dose of UDCA
The EASL guidelines in lay terms suggest for questions for your next appointment
There is more you can do to manage your PBC than just taking medication.
We are happiest when we’re looking after ourselves properly, and that doesn’t change when you have PBC. How active you are, what you eat, and other little choices you make day-today can make a real difference in your happiness and wellbeing. Remember, different things work for different people, and it may take a little trial and error to find the best strategy for you.
Find recipe ideas in every edition of Bear Facts
Our compendium is full of lifestyle advice
ranging from sleeping to mental health
Watch Esther’s story about movement as
her medicine, and all the other videos on our
This isn’t a journey you need to make on your own.
When you’re diagnosed with a disease you might not have heard of; it’s normal to feel shaken, frightened or even isolated. But we promise, you’re not alone. From coffee mornings to management workshops, the Foundation has a busy calendar of events all over the UK to help you meet friends you didn’t know you had. Just sharing a cup of tea with someone who really understands what you’re going through can make all the difference. And who knows, as you’ve found the support you need, you may find you’ve given it right back.
Call our 24-hour helpline anytime, any day:
0131 556 6811
Come along to an event happening near you
Become part of our ever-growing volunteer network
Talk to other members about anything on our Health Unlocked forum