We believe that every single person affected by PBC has the right to free information, we will not charge for this information, nor will we charge a membership fee. We work closely with our Medical Advisory Board to bring you accurate up-to-date information, as well as our website we produce leaflets and guides for patients and healthcare professionals, the Compendium (our most substantial source of information), Bear Facts (our quarterly magazine), and resources developed especially for children.
A number of resources are exclusive content for our registered services uses. You will need to login to view these. If you are not already registered with the Foundation, it is free to join and you will be able to access all our services and events. You can also download samples from our Compendium and Bear Facts magazine below. Information, tools, and trackers are also available on our Self-care App, and you can watch bite-sized videos about different PBC topics or catchup on our Healthcare Q&As on PBC TV, our YouTube channel.
Our publications and leaflets are available for you to download, print, or read online. You are welcome to pass these on, as appropriate, to your own medical expert, consultant or to family and friends to help give them a greater understanding of your condition.
- General Information DOWNLOAD
- PBC for Patients DOWNLOAD
- PBC for Healthcare Professionals DOWNLOAD
- Compendium: LIVING WITH PBC EXCLUSIVE CONTENT
- Compendium Sample: INVESTING IN ENERGY DOWNLOAD
- Compendium Sample: MEDICATIONS & PBC DOWNLOAD
- PBC for Children EXCLUSIVE CONTENT
- Urso Dose Calculator DOWNLOAD
We have created a series of Patient Guides to help you navigate your PBC journey, these include lay term guides to the EASL and AASLD Clinical Practice Guidelines for the diagnosis and management of patients with PBC.
Bear Facts Magazine
Our quarterly magazine is called the Bear Facts. It includes fundraising stories and ideas, awareness campaigns, news, events, and specialist PBC clinic pages.
We regularly review the content of our resources, so if you have any feedback please do send it to us at firstname.lastname@example.org.