La Fondazione PBC è l'unica organizzazione sede nel Regno Unito che si occupa specificamente con PBC.
I vostri idee di raccolta fondi
There are many ways to raise money for the Foundation. Here are some examples of what other people have done.
Holmfirth’s Hannah’s hair full of Heinz
Bathed in baked beans for two hours – August 3rd 2014
In what amounts to probably the most unusual fundraiser we have seen for a while, Hannah Walker of Holmfirth was doused in baked beans. She told the Bear Facts:
It was colder than expected – I was shivering through it! It was lumpy and gross and in the end people would pay a lot to chuck a tin full over my head!! Longest two hours of my life, but it was all worth it and I raised a total of £414.89. Thanks for the free bath from 'Atlas Bathrooms' of Lockwood, Huddersfield
It was a lovely day overall. Thanks to all at PBC Foundation for the support!!
Ed Seddon from Warrington, London Marathon 2014
As I sat at the dinner table on Christmas day looking at the vast quantity of food all I could think of was in a few months’ time I would be running 26.2 miles round London and I needed to try and be as fit as I could. Then during January on cold winter mornings it was the thought of running down the Mall that kept me going. Unfortunately due to work and family commitments the most I was able to do in training was about 18 miles.
The day itself was great and the experience amazing. My running wasn’t quite as I had hoped and although I kept a good pace for about 16 miles I just ran out of energy at about the same distance as my longest run. Luckily the crowds on the course and fellow runners were great and kept me going. Running along the embankment, past the Houses of Parliament and on to Buckingham Palace is one of the great moments in life.
After the London Marathon I then did the Liverpool Marathon and was very lucky to have so many people sponsor me and a very generous employer - I raised a total of £3,131.
Clydesdale Bank Bungee Jump
Fourteen intrepid members of the Clydesdale Bank carried out a bungee jump from a huge crane. Here is an account of the day from group leader, James Harvie.
“I don't think any of us looked forward to this beforehand and the travel to the Crane certainly didn't help as I think you can see it even from around five miles away. It was intimidating to say the least.
With the fourteen of us being split in three groups, the first group were called to action. I think this is where it suddenly felt real. After being weighed, tagged and numbered and pulled into the tightest of harnesses, there was no going back. Taking the lift up and stepping into a fresh gusty breeze certainly woke us up. We made our way with little fuss to the very edge of the crane and while the rest of us sat after chaining ourselves to the side, the first person was led to the edge. With a quick briefing and reassurance, the jump was done three seconds of free fall and a few minutes of being pulled back up were all worth it in the end. After the first jumper, it was a conveyer belt thereafter and smiles were even managed by all. After a few hours we had all jumped with minimum of fuss.
Some are now adrenaline junkies and are looking for the next big thing, others have resigned that to a tick off their bucket list never to be repeated again. But, everyone agreed that the money raised was worth the leap of faith, with a fantastic amount raised for a worthwhile cause”.
Between them they raised an amazing £3,541.72
Nottingham yard sale proves to be Poplar
For many years Poplars Church in Worksop, Nottinghamshire, has held a Yard Sale twice a week, selling donated goods and clothing and building relationships with regular customers. The proceeds (and the prices) are fairly modest, but for a long time they boosted the church’s work in Romania. Nowadays all takings are sent for a few weeks or months to a charity chosen by the Yard Sales’ staff. Janet Smith, who had her transplant seventeen years ago, chose PBC this time, and when the weekly totals were totted up, the donation came to £2,500. Janet was amazed and delighted, and we are too.