It can be really worrying when someone you care about is going through a difficult time. It is not at all uncommon for those diagnosed with PBC to take a good while to come to terms with the information, what it means, and how it affects them. It can sometimes lead to shock, sadness, depression, or even grief, and we often hear about changes in people’s mood and mental health during this period. Whilst they are processing the diagnosis, it can also be incredibly hard on those around them.

You may have lots of questions and different feelings, not only concern for your partner, family member or friend, but also wondering if or how it will change or affect your life and relationship.

The first thing we must say is well done! If you are reading this page, you are actively seeking information and involvement in your loved one’s journey. Being present really is the most important thing to most people living with a long-term health condition.

Secondly, please be reassured that you don’t need to be an expert in PBC to offer support, it’s often small everyday actions, and a sense of understanding that makes the most difference. The sections below include information and tips about PBC, its symptoms, and what it means for you.