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Newly Diagnosed

The PBC Foundation is the only organisation based in the UK that deals specifically with PBC .



We are pleased to announce the release of our new and improved app, which is available free to download on Apple and Android mobile devices.

Here’s a selection of things you can do with the new features:

·         Record your symptoms on a day-to-day basis and your biochemistry results

·         Personalise the app to you, your journey and your priorities

·         Gain full access to important information, The PBC Compendium and EASL Lay guidelines

·         View the latest information on research, patient surveys and clinical trials

·         Self-management tools that will help better manage your PBC on a daily basis


As part of a patient community, we can drive forward progress in PBC simply by recording data on the unmet needs we face every day. With you becoming part of our international patient registry, we will be able to directly influence medial research and help pharmaceutical companies discover new treatments to help PBC sufferers.

The tools, publications, and information you record can be shared with your clinician to assist with your ongoing appointments.  Everything you record will be safely stored, anonymised and protected by our digital partner MTC Media.

How to download the app

Download from the store links below. 

iOS: https://apps.apple.com/gb/app/pbc-foundation-self-management/id1225705494

Android: https://play.google.com/store/apps/details?id=uk.org.pbcfoundation.pbcapp1

Please note that once you have downloaded the app and have attempted to sign in with your usual username and password, you will receive a message on screen stating that your password has been expired. A reset code will then be sent to your email address for you to change your password.

To ensure that we deliver the best service possible, we will continue to improve the app over time, so do please give us your feedback.