New Survey: Patient Participation in Clinical Trials


We have a new survey coming up on the App and we desperately need your voice to guide us. In recent conversations with regulators, they have expressed a “need” for 2 year placebo trial in disease progression in PBC. We find this to be unacceptable, but we need to be absolutely sure this is your view, too. So, we are asking a series of questions on your thoughts to see if we can take data to the regulators in order to fight on your behalf.


Can you please tell us your thoughts so we can include you in the conversation. We would be grateful if you can complete the survey before our International PBC Summit begins on 23rd May.

You can download the App from your own app store or you can use these links.

Apple device:
Android device:

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